When Your Loved One Has Lyme: What You Ought To Know

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Your family, friend, or significant other has Lyme disease. You have so many questions running on your mind. Maybe you don’t have questions, but you want to know what’s going on. In this article, we will try to provide simple explanations to some of your queries. It is our goal to make your community a clean and healthy place to live in, to be aware that tick-borne illnesses like Lyme can happen to anyone – even to you.

Here are some of the things you ought to know if your loved one has Lyme.

  • You Won’t Know It’s Lyme If You Just Look On The Outside. Individuals with Lyme disease don’t appear sick with their eyes all deep and gray. They look very well on the outside. Lyme disease doesn’t have visible signs and symptoms, which is why it is called an invisible illness. You’d think you’re looking at a normally okay person, but inside he’s very weak, with muscles aching like hell. Some of them even pretend like they’re totally fine (they’d like to think they are) even though they’re anxious, depressed, and hurt internally.


  • The Symptoms Are Unpredictable – Slow At Times, But Very Quickly At Other Times. They can be watching television and relaxing one time, feeling very fine, then suddenly they feel tremendously weak and tired as if they’re going to pass out (and sometimes they do). You will be shocked and devastated that you didn’t know where it came from. But soon you’ll realize that this is the nature of Lyme’s disease.  Sandy Berenbaum, LCSW says that “Given the complexity and unpredictability of symptoms, and the inadequate understanding of this illness in the greater community,” it can happen that “At times, family members mistakenly attribute the child’s symptoms and behaviors to willfulness on the part of the child.”

Perhaps you didn’t know that your love was not okay since she woke up in the morning, to begin with – she was just a good actress, and she played the part well that day. In the latter part of the day, her symptoms get worse, and you’re shocked that she tells you the pain is 10 out of 10. You think it’s happening so abruptly, but no. She was already feeling a 7 out of 10 earlier, but she just faked it.

  • They May Not Be Strong Enough To Work Or Go To School. It’s not because they’ve given up on their dreams, or they’re lazy, or undetermined. It’s that Lyme causes them to be extremely fatigued and weak even to take a shower or prepare their meals all by themselves, so going to school or the workplace would be a no-no. A friend of mine who has Lyme disease came to me one day feeling angry because someone told her how lucky she is to be staying at home all day. “What did he think? That it’s so much fun being chronically sick and staying at home all day? Even when I’m home, I am so useless! How can I be lucky?”
    Judy Tsafrir M.D. supports this claim. “It can result in extreme social isolation as well as an inability to work, travel or interact with others. Some even become homeless because every environment feels intolerably toxic and threatening. Such dramatic and seemingly irrational behavior can result in rejection by family and friends.” He adds, “It is rarely appreciated that they are literally suffering from brain damage.”
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Believe me; you don’t want to say that to someone with the illness. These individuals don’t just feel under the weather – they feel like they’re going to die anytime. Sometimes even breathing is very difficult to do. Being lucky is so far from the truth.

  • Most Lyme Patients Go Through A Different Case. This means that one treatment may help alleviate the disease, but it may not work at all for another. If you’ve been bringing your love to the hospital and notice why another patient’s symptoms have lessened, but your loved ones haven’t, it’s because no one treatment method will work for everyone. Lynn A. Durand, MD says, “I’ve seen extremely strong, vital athletes who can basically barely walk to the mailbox [after contracting Lyme disease] and then you see some older people that do very well.” He adds, “It’s a lot more than just the vitality of the patient.” Additionally, late-stage Lyme disease is tough to fathom. Sometimes, the frustration kicks in when your loved one has been treated for months but hasn’t reaped even a few benefits. But you just need to try and find other solutions.

Don’t show how sad or angry you are about it. Think about your loved one who has the disease. He must be feeling a hundred times more angry and sad as you. Show compassion, patience, and hope. These are necessary for you and your loved one.

  • Sadly, Insurance Doesn’t Cover Lyme, Especially When It’s Late Stage. When someone is showing symptoms of the disease in its early stages, insurance can cover its cost for antibiotics and other treatments that could help cure the initial symptoms. However, when the disease has progressed to the chronic stage, treatments are complicated and expensive. The patient will also need all the vitamins and supplements he can take to maintain or stay relatively healthy. Finally, the late stages of Lyme disease aren’t covered by insurance.

In all honesty, chronic illnesses such as Lyme disease can happen to practically anyone. No immunity or injection can help us get away from having the disease. If someone you love has Lyme disease right now, the best thing for you to do is grasp all the knowledge you can get about it. Understand the disease so you can better understand your loved one. They can have tantrums, and their frustrations can lead to outbursts of anger and sadness, but be patient. They’ll badly need it.

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Lyme disease involves the whole body and all aspects of life.  “If a child or an adult gets treated with the appropriate antibiotics in the early stages of Lyme disease, it’s rare for that person to develop the neurologic or cardiologic symptoms that can come if not treated.” Perri Klass, M.D. explains. But still, you can ease someone’s pain by being there, because your presence will mean very much to them.

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