Our Family’s Journey With Lyme Disease

It was seven years ago when I was diagnosed with Lyme disease. It was not that shocking for me because I never really thought it could change our lives forever. That time, I was not even scared at all. I am confident that, like any other mild fever and flue, I will soon get better. My family was genuinely worried about my health, but I was mind-boggled why they treated the news as a big deal. Currently, I am a grown-up teenager already. And now, I can say that it’s already clear why my family made a fuss over a disease I got seven years ago.

How I Got The Disease

The whole Lyme disease situation seemingly came out of nowhere. I was an active kid at school. I was a dancer and a baseball player. But one day, all of a sudden, my legs went numb. I began experiencing chills inside my body. There’s the exhaustion, joint pain, and even hair loss. That time I didn’t entirely understand what is going on. I thought maybe my body is failing me because of too many physical activities I do every day. That is for both at home and school. When my parents took me back to our house, I made sure to rest and be healthy as I can be. But resting on those days is the worse. I got bored and eventually became emotionally and mentally unstable.

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After a couple of days, my parents noticed that my condition is not getting any better. That is why they have decided to take me to the hospital. However, most doctors were unable to figure out what is wrong with me. And although some of them already suspected Lyme disease, they dismissed it due to the negative results on my blood tests. It was a sad moment for my family and me because experts couldn’t explain my situation. Some doctors even called it a psychological condition, and that maybe I was only trying to fake it. Honestly, it was so devastating when one of them tried to convince me that I should tell the truth that I was only making things up.

But fortunately, there was this one expert that sticks with me through my Lyme disease battle. It was then I tested positive for Lyme and other tick-borne diseases. And on the first few weeks of treatment, I managed to move half of my body. And then a couple of days, I was able to feel my toes again. But as soon as I started to feel better, the treatment ended because my family can no longer afford it. That was the worst moment of my life because I thought I was going to stay hopeless forever.


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With all the emotional frustrations I have that day, I posted it on my social media account. It was a story of hopelessness and feelings of defeat. I was about to accept my faith that I will no longer experience the life I have always wanted. But a miracle happened. People from across the country offered some help. Some individuals even created a fund-raising that will gather enough money for me to continue my medication. I was so overwhelmed and happy that my darker days turn into light. My family didn’t waste any moment and scheduled me for another consultation and treatment. The process was so emotionally and mentally exhausting. But I was glad to get back to it.

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In My Family’s Busy Lives

It has become my family’s ritual to assemble and divide medications in our dining table. Although I had to take almost 70 pills a day, it doesn’t matter. These are pills and supplements prescribed by my doctor. These are necessary because my Lyme disease and other infections caused by it are severely damaging my body. My condition is worst that it crippled me. For the past years, I was often lying in my bed or sitting on a wheeled chair. My dad would carry me around the house if ever I intended to change locations from time to time. But that is okay. Yes, some of my lower body’s nerves are severely affected by the diseases, and I understand that it will take a while or even a couple of years for the nerves to regrow. But I am more than willing to wait for that to happen. Maybe not in a couple of years, but soon I will be able to move my lower extremities.

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For the past couple of years that I was hopeless, I now have the reason to fight. With proper physical therapy, continued medication, and my family’s support, I will soon be able to walk again. As I envisioned myself standing, it already makes me happy, excited, and motivated to get better. I wholeheartedly thank all those people who supported family and me throughout this Lyme disease battle.

Knowing The Difference Between Lyme Disease And COVID-19

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Summer season is here, yet we are facing the COVID-19 pandemic. However, this is also the season for Lyme disease. Lyme disease is a tick-borne illness in the United States. This disease spreads through bites of infected ticks, and it could lead to permanent disability on our bodies if left untreated.

While these two diseases are different, some people mistook Lyme disease for COVID-19 and the other way around.

Here are some reasons why the symptoms of Lyme Disease and COVID-19 are confusing and the key features to distinguish between these two diseases easily.

What Makes COVID-19 And Lyme Disease Confusing

According to Jory Brinkerhoff, Ph. D, “Lyme, like other tick-borne diseases, is associated with general flu-like symptoms, [such as] fever, head and body ache fatigue. These are also symptoms of COVID-19.”

He added that “tick-borne diseases are not likely to cause respiratory symptoms like those seen in COVID-19, but there are certainly symptoms in common.”

Lyme disease’s early signs and symptoms include fever and chills, headache, fatigue, and muscle aches. If left untreated, the last symptoms are severe headaches and stiffness, heart palpitations or irregular heartbeat, dizziness, shortness of breath, etc.

On the other hand, some early signs of COVID-19 are dizziness, shortness of breath, fever and chills, nausea, muscle or body aches, fatigue, congestion, diarrhea, sore throat, etc.

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You can observe that some of Lyme disease symptoms look familiar because they overlap with the symptoms of COVID-19. But despite the similarities in the symptoms, doctors and scientists say that there are key symptoms that easily distinguish Lyme disease from COVID-19. 

How The Illness Enters The Body

One of the first vital differences between Lyme Disease and COVID-19 is its entry into our bodies. Cold viruses and coronavirus enter the body through the nasal passages and tissues, so the most infected parts of the body are those in the respiratory system.

However, tick-borne diseases like Lyme Disease enters the body through the skin and bloodstream; hence the symptoms appear on our skin and other organs inside our bodies.

Testing And Treatment Options

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There are two steps in testing for Lyme Disease, and both of which are blood tests. If both blood tests resulted positive, it is a definite diagnosis that you have Lyme Disease.

For COVID-19, it requires a polymerase chain reaction (PCR) test to detect if you have the RNA of the virus. The PCR test happens through swab tests or saliva samples. 

To protect yourself from acquiring Lyme Disease, doctors recommend limiting your exposure in grassy or wooded areas, such as forests. Since a bacterial infection causes Lyme Disease, antibiotics such as amoxicillin can fully recover a patient.

On the other hand, doctors suggest to limit close face-to-face contact with people outside, wash your hands immediately once you get home and wear face masks if you are out to prevent transmission of COVID-19. There is no approved treatment or vaccine yet to cure COVID-19.

Erythema Migrans Rash

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Erythema Migrans, also known as bullseye rash, is common among those who have Lyme Disease. 80% of the people suffering from this disease develop a rash around the tick bite, which resembles a bullseye.

This distinctive rash helps doctors to recognize that the person has Lyme Disease. The redness may feel warm to the touch, but it is itchy or painful, and it may appear on any part of the body. This symptom is not present in COVID-19. 

Worsened Symptoms for Lyme Disease 

Severe symptoms will appear if there are no early symptoms present that need treatment or left untreated. Lyme Disease can infect the skin, joints, muscles, nervous system, and heart rapidly. These symptoms may appear one to four months after the infection.

Some of these symptoms include conjunctivitis, swelling of the joints, facial palsy, multiple rashes appearing on the body, poor memory, and numbness in the arms or legs. These symptoms are usually not present in COVID-19 as well.

Know More About Lyme Disease And COVID-19

Amid the COVID-19 pandemic, we must protect ourselves whenever we go outside. This precautionary measure is crucial, especially to those who have Lyme Disease as they are more prone to the COVID-19 virus.

During this time, it is best to know both diseases to be prepared and be equipped with the necessary protection and medication for speedy recovery. 

How Journaling Helps Lyme Disease Patients

Having Lyme disease entails that there will be a lot of days when you cannot leave the house, much less your bed. That is especially true if you have been diagnosed recently, and you are not used to the symptoms. All you can do is stay in a fetal position in the bedroom, cry over the pain that you feel everywhere, and not even want to eat anything.

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What dealing with days like that means is that you may always be in your head. You cannot talk about how you feel, or at least explain it to your loved ones. Even if you can, you may not have the energy to do so. It is a little fact that not everyone understands about Lyme disease patients.

The saddening result of the latter is that most of the emotions and thoughts remain stuck in the ill person’s mind. If they cannot get rid of them, the ideas may alter their brain function and cause anxiety, depression, and other conditions.

For all the reasons mentioned above, I tend to recommend journaling to people, ill or not. For Lyme disease patients, it is especially helpful as it will allow you to:

Say Everything Fearlessly

“They suggest that at least for fairly minor life problems, something as simple as writing about the problem for 20 minutes can yield important effects not only in terms of physical health and mental health, but also in terms of cognitive abilities,” Adriel Boals, PhD, says.

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The primary advantage of writing your thoughts – albeit privately – is that you can express anything fearlessly. If you want to curse yourself or the tick that has bitten and given you Lyme, you can do it. In case you wish to hate on every doctor who cannot recommend a long-term cure for your illness, no one still disagrees with you.

“There’s a lot of science grounding expressive language writing and journaling as being an extremely helpful piece for maintaining mental wellness,” says Deborah Serani, PsyD.

The journal is an extension of yourself. You have no reason to show it to anyone but yourself, so feel free to write everything on your mind.

Stop Worrying About Anyone’s Reaction

Autoimmune diseases do not pick when or where they will attack. It is always ideal if it happens before you leave the house because it means that other people won’t see you in pain. In case you feel the symptoms at work or in the train, though, you may keep on stressing over how others may react when you cry out loud all of a sudden.

Still, if you have a journal, you can write about what’s happening to you without worrying about anyone’s reaction.

Do Therapy On Yourself

According to Maud Purcell, LCSW, CEAP, “Writing about anger, sadness and other painful emotions helps to release the intensity of these feelings. By doing so you will feel calmer and better able to stay in the present.”

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How difficult can it be to buy a $1 or $2 journaling notebook? You can also use any pen that may be rolling around in your house right now. When you combine such cheap tools with your thoughts, the former will not be noticeable at all. What matters is that you have channeled your deepest secrets from your head to the paper and do not need to carry it everywhere you go.

This alternative treatment may work better than other expensive forms of therapy. Not to mention, you will not feel shy about expressing your thoughts because the journal will be your sounding board, and you are your own therapist.

I don’t expect for you to see the positive change that journaling can do in your life but just wait a little. Clarity, peacefulness, and all those good things will come soon enough.

Happy journaling!

Why Writing Is An Ideal Job For Lyme Disease Patients

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How is life treating you now that you are aware of your Lyme disease?
I know how difficult it can be. There may be days when you do not know which body part to scratch due to the rashes that have appeared all over you. At times, even breathing in and out may be painful because your muscles and joints seem to be on fire. And as if those symptoms are not enough, you may also experience chills, extreme fatigue, and headache.
The truth about Lyme disease – or any autoimmune disorder for that matter – is that no one knows when the episodes will occur and for how long. Sometimes you can go on for weeks without feeling any symptoms. Other times, however, it would be lucky if you can get a break for a day.
Because of all that, keeping your day job must be a real challenge. Having an understanding boss is great, yes, but they may not always be forgiving. After all, no employee wants to think that they are not getting what they are paying you for.

In case you want to let go of your day job but still need to make a living somehow, you should try writing articles or books.

Here’s why it’s beneficial for you.

It Is Not A Physically Taxing Profession

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Being a writer entails that you will mostly be working on a computer. You will ideally not have to go to different locations to get a story, unlike news reporters. All the information that you need can either come from your client or the internet.

What it entails is that you do not have to exert a lot of energy at work every day. That is a good thing because physical exhaustion may trigger the symptoms of Lyme disease and prevent you from finishing your projects.

You Can Share Your Story

Regardless of the genre or topics that get assigned to you, you can still find a way to share your story to the readers. For instance, if you have to write about garden stuff, you can talk about how to avoid ticks in the backyard. In case your task is make an article about autoimmune diseases, then you undoubtedly have something to share, too.

Writing is great because you won’t feel too shy to open up about your experiences. After all, the process may be no different from working on your diary. At some point, you may even manage to voice out your feelings freely.

You May Be Able To Work From Home

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Since you write via computer, your boss may not mind it if you want to work from home. As long as there’s internet connection in the house, you can send documents back and forth.

If we are honest, being able to work from home may be advantageous for you. You can write at your own pace and stop when you feel the symptoms. There’s no traffic for you to worry about as well, so you can focus on content creation.

Writing is probably one of the most underrated jobs out there. Without writers, though, people won’t have books to read or articles to get recipes or tips from. You should try it, especially if you have a condition like Lyme disease that keeps you from being physically active.

Good luck!

Hard Truths That Might Pull You Out Of Depression Post-Diagnosis

I have been a long-time fan of the American Ninja Warrior. Every time I would see the players and hear about their backstory, I would feel inspired to workout and work around my personal issues. Not to mention, it was thrilling to see men and women astound everyone with their strength and determination to climb up a tall wall without ropes or anything to hold on to.

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The thing is, one of the regular players named Elet Hall turned out to have Lyme disease. It was not something that you would expect from such a fit guy. But then he was great at explaining that anyone could have this autoimmune disorder, considering ticks could bite any person. The man was such an inspiration because that condition could put someone in so much pain. For Elet Hall to be able to do extreme workouts, therefore, was genuinely impressive.

Still, I knew that not all Lyme patients had the same attitude as that American Ninja Warrior. Many tend to get depressed post-diagnosis, especially since it’s no secret how difficult it is to live with an incurable disease. They cannot do anything other than wallow in pain or curse the heavens for giving them the disorder. Elvira Aletta, Ph.D. says that “Chronic illness means getting sick and being told it’s not going away, and that stinks. Our bodies have suddenly freaked out on us and we’ve lost control of the one thing we thought we could count on.”

In case you haven’t accepted your condition yet, here are a few hard truths that might pull you out of depression.

The World Won’t Stop Rotating Even If You Sulk Every Day

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Depressed individuals tend to feel anger towards everyone, even to the ones who are trying to care for them. It’s not that they are blaming the illness to those people. It’s just that they can’t seem to control their sulky attitude.

The truth, however, is that moodiness cannot do you any good. You may push your loved ones away instead of getting their sympathy.

Depression Cannot Make The Disease Go Away

Some people tend to act as well as if they cannot do anything through depression post-diagnosis.

Well, it is true that hearing a doctor say that you have an autoimmune disorder can be saddening. You have every right to be unhappy with the news. However, when your tears dry up, you should also realize that depression cannot cure you. If anything, it might make matters worse, so try to rein in your negative thoughts.

You Only Make Your Life Extra Difficult By Moping Around

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Depression makes life extra challenging, in the sense that it aggravates every symptom you experience. You may always be in your head, too, feeling sorry for yourself and thinking of how unlucky you are. Consequently, it also makes it hard for you to appreciate the people around you. Like what Barton Goldsmith, PhD. has illustrated, “It’s very hard to think of other people when you’re wrapped in a prickly blanket of sadness, and all you can think about is your own pain. Be proactive and just a few steps you need to heal. Try reading a book to help you understand what you are going through and how best to deal with it.”

If you want to at least lessen the number of times that you deal with the symptoms, you need to stop moping around. Not tomorrow – now. That way, you can think of ways to distract yourself when you’re in pain and, more importantly, live happily despite the disease.

Aside from this, you may also want to talk to one of the counselors from the online platform, BetterHelp. Here, you will be provided with sound and enlightening advice about caring for your mental health in several ways. Learn more about why the benefits of online therapy

Final Thoughts

Getting diagnosed with Lyme disease is not the end of the world. The diagnosis may shock and sadden you at first, but you should not allow it to depress you. Otherwise, you’ll be stuck in that sorry state forever. In any case, always remember these words by Allison Abrams, LCSW: Depression has absolutely nothing to do with the strength of character, any more than cancer or any other disease does. It is brought on by a combination of genetic, biological, environmental, and psychological factors that go beyond mood.”


Health Hacks 101: Know How The 2016 New York Lyme Disease Convention Can Improve Healthcare Quality  


 The 2016 New York Lyme Disease Convention is just one of many ways to raise awareness about the relevance of improving the quality of healthcare systems for different patients of different illnesses around the globe.

Health Is Wealth

We’ve probably heard the saying “health is wealth” a million times. This saying implies that our health is valuable. Without it, we wouldn’t be able to accomplish our daily tasks. However, for financially-challenged families, the concept of health care isn’t even an option anymore.

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One of the biggest reasons why healthcare providers call for the improvement of the quality and rates of healthcare services is because as much as hospitals and clinics would want to help the sick, many patients cannot afford it. Given this, most people don’t even bother to have themselves checked anymore.

Going Beyond
With this, activities like the 2016 New York Lyme Disease Convention aim to involve the public in educational discussions that can somehow share information, alongside treatment options, about different health issues.

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In the context of Lyme disease, since many misconceptions and misdiagnoses surround it, doctors and scientists were invited to speak about the topic to raise awareness on it and how to address it correctly. It is essential because the incorrect diagnosis can cause trauma, additional expenses, and other conflicts to the patients involved.

Impact Of Information
Knowledge-sharing through conventions like these is essential because it can spark new ideas and solutions to address various problems. It may seem simple, but awareness of different health issues can help families monitor their health better and at the same time help manage their financial concerns.

Being able to comprehend the technicalities of any illness can help citizens be aware of the signs to look out for and, thus, lead to fewer expenses and worries. Meanwhile, doctors can improve their servicing to enhance the quality of healthcare systems worldwide as well.

These events should be maximized well because these are avenues for healthy discussions towards healthier lifestyles. Imagine if patients could understand the symptoms and treatment facilities available to address their illnesses and healthcare providers could learn to adapt more to the needs, capacities, and suggestions of their patients. What a healthier world that is!


The Impact Of Lyme Disease

Staying positive can become an incredible tool for living a healthy life. That is especially when an individual is dealing with a severe health challenge such as Lyme disease. A lot of psychologists agree that to be able to handle a chronic condition, one must care for his emotional and mental health first. With the specific awareness of how someone can become emotionally and mentally stable, it secures a significant improvement in the process of an overall recovery. The incidence of Lyme is on the rise and these problems may become more common than any of us would like to see. “Building awareness is our best bet for helping ourselves and others now and moving forward.”, Joseph Trunzo Ph.D. advises.

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The Struggle With The Condition

Lyme disease is something that even experts often get misdiagnosed. Usually, they assume it to be some anxiety and depressive disorder. Individuals with the condition can’t seem to understand and explain the cause of their fatigue and loss of energy. There is consistent of restlessness even if a person sleeps in for 12-hours a day. In some unfortunate instances, depending on an individual, there is a random loss of vision, consciousness, and too much headache. The body is not cooperating and is giving up always. Honestly, it can be entirely frustrating for an individual who only wants to have a happy and healthy life.

It feels like a universal thing that even if you don’t speak the same language, people still share the same sentiments toward the betterment of someone’s overall health. Some cases, Lyme disease, may take a person into exhausting doctor visitations and lots of testing before a secured diagnosis. The condition can make someone feel discouraged, especially when it gets undiagnosed for an extended period too. It can be depressing, overwhelming, and exhausting to handle.

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“Researchers are still trying to figure out exactly how and why Lyme disease affects people in different ways and how best to treat them.” says Matthew Berger, M.D.  Yes, some therapy and medication can help ease the struggle of the condition.  However, when it already affects the mental state of an individual, it becomes one of the worse. That is because the disease can make someone feel like they have been stripped with his life. There are instances that he won’t be able to do what he wants, he will not be able to try new things, and will never get to explore the many great things about the world.

The Proper Mindset

Trying to get rid of the disease will inevitably take time. It will require a lot of sacrifices, tons of therapy and medication, and emotional support as well. There is also no assurance as to where and when the suffering would end. However, if there is a proper mindset of dealing with things around, even if Lyme disease is present, a lot of things can change. The attitude of looking forward and staying positive can mean a lot to an individual who may seem to find no hope at all. It will be enriching to make the shift and decide to have the kind of happiness and joy that the individual never imagines to see differently.

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The Healthier Shift To An Overall Lifestyle

One of the best ways to battle Lyme disease is by eating healthy and getting enough sleep. Those two are the most significant things that will entirely create a difference in an individual’s daily routine. The process should not need to go after a strict order for it to become effective, though. As long as there is a specific goal of wanting to get better, everything else will follow. The person can start making changes in his eating and sleeping habits. “Slowly increasing movement can be incredibly helpful,” says Afton Hassett, PsyD.

Yes, an individual may feel confused about the best foods to take to fight the condition. But what happens to be a misconception is that he will then incorporate a raw diet more often. Some examples of this practice are juicing vegetables and trying to eat more fruits and vegetables. Surprisingly, that is not the idea over a healthy diet for Lyme disease. Instead, the main goal should be boosting and supporting the immune system. Therefore, what a person should do is follow a diet that heals the overall function of the body’s food processor, which is the gut. Part of something to remember is that most people think that there are specific foods that will help them heal. Honestly, there is none. That is because when something has taken over the body, it tries to heal itself. But for it to fight back, it needs a better and functioning immune system.

A little strength in mind and body is all that the individual is going to need to be able to fight with the symptoms of the Lyme disease. However, before trying and incorporating different strategies, always remember to consult a healthcare professional.

Mental Health Guide: How To Deal With Lyme

Finding out that you are suffering from a severe illness can disheartening. It can make you lose interest in doing the things that you usually enjoy. At the same time, it can also increase the stress and anxiety that you may feel. The reason behind this is because negativity and self-doubt will start to cloud your mind. You will begin to think that everything in your life is falling apart. The saddest part of all is that it can affect your mental health, to the point that you will start to push away the people around you. Aside from this, your life will also be filled with sadness and self-pity.

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If you are going through a hard and challenging time because of Lyme disease, do not worry because there is always a way out of this situation. Keep in mind that you have the absolute control to change your life. You can make things work as long as you know how to improve your mindset and focus on the positive aspect of life. Remember that you have to focus on your mental health because it can affect your physical wellness. “It has been well established that chronic loneliness has a damaging impact on both our physical health and our longevity,” Guy Winch Ph.D. wrote. Here are the tips and tricks that you must consider if you want to improve your mental health despite the presence of Lyme disease:

Accept Your Situation

The first or initial step that you have to consider is to accept the diagnosis of your medical condition. Take note that the more you deny the existence of your illness, the more difficult it is for you to move forward with your days. Stop lying to yourself about the present circumstances affecting your health. Instead, accept it with open arms and learn to deal with. Remember that just because you are sick does not mean that you are already worthless. You can still turn your life around. However, you can only do this if you recognize that you are indeed sick. Start from there and everything great will follow.

“Being diagnosed with a life-threatening or terminal disease is likely to trigger feelings of fear and grief. More than ever, it is important to surround yourself with positive and supportive people. Try to find small things that you can enjoy every day, and set realistic short-term goals for yourself. Even small goals such as a visit to a park or museum, or a phone call with a close friend, can help you make the most of each day,” Teri L. Bourdeau, PhD, ABPP, and co-author said.

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Open Up To Someone

Do you think that life is too much? Does your medical illness deeply sadden you? Do you want to feel relieved or great again? If you answered yes to all these inquiries, then all you have to do is to look for someone whom you can trust. Use your friendship or relationship with that individual by talking about all your thoughts and emotions. Keep in mind that this person is not going to judge you for whatever it is that you will say or do to him. When you talk about your feelings, you will begin to see a different perspective on life. At the same time, it can also somehow take your burden away.

Seek Professional Help

Gone are the days when ill people would stay in the corner of a hospital room and suffer depression while they are battling an illness. Nowadays, it is already possible to get in touch with a therapist who can be of service to people like you. This mental health expert can help in processing your thoughts and emotions, especially those that are brought by your medical condition. However, you need to understand that therapy sessions are only ideal if the client or patient knows how to cooperate with the therapist. If you want results, be sure to participate in the therapy meetings or appointments.

Get All The Help You Need

Now that you are sick, it is essential for you to know that many people in your life would be willing to help you fight your life’s battle. Do not deprive them of an opportunity to extend their assistance and support. Just because they want to help you does not mean that they pity your condition. They are doing what is necessary because they want to be by your side at this challenging moment. Instead of pushing them away, make room for their presence in your life. Take note that it is always better to combat Lyme and other illnesses with someone special helping and guiding you.

If you can’t possibly see a therapist face-to-face, try getting advice from the therapists at BetterHelp. It is an online platform consisting of professional therapists and counselors who are ready to listen and provide you with the help you need. You may also want to check out their official Facebook page.

Lyme doesn’t affect just the person with the infection. It can turn the lives of your entire family upside-down. Do the best you can to approach this like a team. If that isn’t possible, recognize the abilities of those around you, and work with them,”
Joseph Trunzo Ph.D. says.

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Lyme can be an annoying and irritating disease, which is why you would often find yourself in a bad mood. As such, we highly recommend that you follow the tips mentioned above. You will be surprised by how these techniques can make you feel better despite your illness. Keep in mind that your mental health is always a top priority, just like your physical wellness.

When Your Loved One Has Lyme: What You Ought To Know

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Your family, friend, or significant other has Lyme disease. You have so many questions running on your mind. Maybe you don’t have questions, but you want to know what’s going on. In this article, we will try to provide simple explanations to some of your queries. It is our goal to make your community a clean and healthy place to live in, to be aware that tick-borne illnesses like Lyme can happen to anyone – even to you.

Here are some of the things you ought to know if your loved one has Lyme.

  • You Won’t Know It’s Lyme If You Just Look On The Outside. Individuals with Lyme disease don’t appear sick with their eyes all deep and gray. They look very well on the outside. Lyme disease doesn’t have visible signs and symptoms, which is why it is called an invisible illness. You’d think you’re looking at a normally okay person, but inside he’s very weak, with muscles aching like hell. Some of them even pretend like they’re totally fine (they’d like to think they are) even though they’re anxious, depressed, and hurt internally.


  • The Symptoms Are Unpredictable – Slow At Times, But Very Quickly At Other Times. They can be watching television and relaxing one time, feeling very fine, then suddenly they feel tremendously weak and tired as if they’re going to pass out (and sometimes they do). You will be shocked and devastated that you didn’t know where it came from. But soon you’ll realize that this is the nature of Lyme’s disease.  Sandy Berenbaum, LCSW says that “Given the complexity and unpredictability of symptoms, and the inadequate understanding of this illness in the greater community,” it can happen that “At times, family members mistakenly attribute the child’s symptoms and behaviors to willfulness on the part of the child.”

Perhaps you didn’t know that your love was not okay since she woke up in the morning, to begin with – she was just a good actress, and she played the part well that day. In the latter part of the day, her symptoms get worse, and you’re shocked that she tells you the pain is 10 out of 10. You think it’s happening so abruptly, but no. She was already feeling a 7 out of 10 earlier, but she just faked it.

  • They May Not Be Strong Enough To Work Or Go To School. It’s not because they’ve given up on their dreams, or they’re lazy, or undetermined. It’s that Lyme causes them to be extremely fatigued and weak even to take a shower or prepare their meals all by themselves, so going to school or the workplace would be a no-no. A friend of mine who has Lyme disease came to me one day feeling angry because someone told her how lucky she is to be staying at home all day. “What did he think? That it’s so much fun being chronically sick and staying at home all day? Even when I’m home, I am so useless! How can I be lucky?”
    Judy Tsafrir M.D. supports this claim. “It can result in extreme social isolation as well as an inability to work, travel or interact with others. Some even become homeless because every environment feels intolerably toxic and threatening. Such dramatic and seemingly irrational behavior can result in rejection by family and friends.” He adds, “It is rarely appreciated that they are literally suffering from brain damage.”
  • Source: bustle.com

Believe me; you don’t want to say that to someone with the illness. These individuals don’t just feel under the weather – they feel like they’re going to die anytime. Sometimes even breathing is very difficult to do. Being lucky is so far from the truth.

  • Most Lyme Patients Go Through A Different Case. This means that one treatment may help alleviate the disease, but it may not work at all for another. If you’ve been bringing your love to the hospital and notice why another patient’s symptoms have lessened, but your loved ones haven’t, it’s because no one treatment method will work for everyone. Lynn A. Durand, MD says, “I’ve seen extremely strong, vital athletes who can basically barely walk to the mailbox [after contracting Lyme disease] and then you see some older people that do very well.” He adds, “It’s a lot more than just the vitality of the patient.” Additionally, late-stage Lyme disease is tough to fathom. Sometimes, the frustration kicks in when your loved one has been treated for months but hasn’t reaped even a few benefits. But you just need to try and find other solutions.

Don’t show how sad or angry you are about it. Think about your loved one who has the disease. He must be feeling a hundred times more angry and sad as you. Show compassion, patience, and hope. These are necessary for you and your loved one.

  • Sadly, Insurance Doesn’t Cover Lyme, Especially When It’s Late Stage. When someone is showing symptoms of the disease in its early stages, insurance can cover its cost for antibiotics and other treatments that could help cure the initial symptoms. However, when the disease has progressed to the chronic stage, treatments are complicated and expensive. The patient will also need all the vitamins and supplements he can take to maintain or stay relatively healthy. Finally, the late stages of Lyme disease aren’t covered by insurance.

In all honesty, chronic illnesses such as Lyme disease can happen to practically anyone. No immunity or injection can help us get away from having the disease. If someone you love has Lyme disease right now, the best thing for you to do is grasp all the knowledge you can get about it. Understand the disease so you can better understand your loved one. They can have tantrums, and their frustrations can lead to outbursts of anger and sadness, but be patient. They’ll badly need it.

Source: commons.wikimedia.org

Lyme disease involves the whole body and all aspects of life.  “If a child or an adult gets treated with the appropriate antibiotics in the early stages of Lyme disease, it’s rare for that person to develop the neurologic or cardiologic symptoms that can come if not treated.” Perri Klass, M.D. explains. But still, you can ease someone’s pain by being there, because your presence will mean very much to them.